Face IT@home

Online Support Tool For People With A Visible Difference

About Face IT@home

What is Face IT?

Face IT provides support and advice for anyone who has worries or is unhappy because they have an unusual appearance (what we call a visible difference). Conditions that can affect appearance are:

Face IT has been designed by experts in the field of appearance psychology and people with a range of conditions that affect appearance who understand the types of worries and problems you might be experiencing.

There are 8 sessions in Face IT. Each session has different exercises and activities and will take 45 - 60 minutes to complete. We'd like you to complete 1 session per week.

How will Face IT help me?

Face IT will help you to learn new skills and will give you useful tips so you feel more confident about the way you look.

You'll learn how to deal with situations that you find upsetting or uncomfortable.

It will help you feel more comfortable meeting new people and being with friends, going to the shops, playing sport, or going to work.

Face IT will also allow you to test out social situations that you might find difficult on the computer (like going out in public or responding to people who stare or ask questions about your appearance), so that you can practice how to manage them and increase your confidence before trying it out for real.

While you are completing Face IT, you will have access to your own personal journal that you can use throughout the program to record your feelings, experiences and progress. This is an important and helpful part of the program and you will be able to access your journal at any time. Feel free to express your feelings however you want.

You can also visit the Face IT@home discussion forum. This is a place where you can meet and socialise with other people who have a visible difference. You can discuss any concerns you may have or offer support to others. The forum is also a place where you can talk about your experiences of using Face IT, for example, any difficulties you might be having or what you particularly like about the program.

Is it difficult?

No, it's a simple program but you will need motivation and commitment to complete it. The key thing to remember about Face IT is that it's up to you how much or how little you get from it.

You'll be asked to do one session per week until you have completed all 8 sessions. But you can repeat sessions or revisit sections during the week or whenever you want to. After you've finished Face IT you will be sent a quiz to remind you of the skills you've learnt.

You'll also be asked to do some easy activities at home to help you practice what you've learnt. The more you practice your skills the more Face IT will help. If you forget to do the activity, don't worry we'll send you an e-mail reminder.

Will Face IT really help?

The tips and advice provided are used by counsellors and support groups. Another version of Face IT has already been scientifically tested and found to be very helpful.

This is the first time this program has been available to people in their own homes. Here are two examples of people who found the tips and advice in Face IT helpful.

Because Face IT is online it's particularly useful for people who can't easily get help from health services or who don't want to talk about their worries face-to-face.

What if I can't do it ... what if it isn't working?

Nothing changes straight away - we all need time to learn new skills and it will take some people longer than others to come to terms with their appearance issues and learn to deal with them. The fact that you're even here, looking at Face IT, shows that you want to help yourself and have the ability to take control.

Remember that practice makes perfect. Doing the activities we give you in or after the sessions will make it easier to learn the new skills. But if you're having difficulty completing a certain activity, don't panic! If you don't succeed first time, that doesn't mean you have failed - DON'T GIVE UP! - have another go. Try to see times when you haven't succeeded as a chance to learn so that you can do things better next time.

Some people will find that Face IT is all the support they need, but others may need further support.

If you're finding life very difficult to deal with, then Face IT may not offer you enough support. In this situation, please seek further help.

The following page has details of different support groups that may be useful if you're upset, want someone to talk to, or want more information about your condition. These contacts are also available on the main menu screen.

Further support

Changing Faces, 33-37 University Street, London, WC1E 6JN

Changing Faces provides support and represents people who have disfigurements of the face or body from any cause.

www.changingfaces.org.uk

0845 4500 275

Achondroplasia.co.uk

Provides support and information for people with short limb dwarfism and their families and carers.

Achondroplasia.co.uk

01761 471 257

Acne Support Group

Offers support, advice and information to those affected by acne or rosacea

Mon-Fri 09.00 - 17.00

020 8841 4747

Arthritis Care

Provides support and information for people with all forms of arthritis.

www.arthritiscare.org.uk

0808 800 405

Breast Cancer Care

Support, information, and advice to those with or recovering from breast cancer.

www.breastcancercare.org.uk

0808 800 6000

British Acoustic Neuroma Association

Offers information, and advice to people with acoustic neuroma, and offers local support groups.

www.bana-uk.com

01623 632143

British Allergy Foundation

Patient information service for people with all types of allergies including skin allergies.

www.allergyuk.org

020 8303 8583 (Mon-Fri 09.00 - 17.00)

British Association of Dermatologists

Fact sheets on general dermatological conditions.

www.bad.org.uk

020 7383 0266

Burn Survivors Association

Provides information, support and advice to those with burn injuries.

www.burnsurvivorsassociation.com

Cancer Backup

Information, support and advice for people with cancer or recovering from cancer.

www.cancerbackup.org.uk

0808 800 1234

Debra

Helps people with epidermolysis bullosa and researches cures.

www.debra.org.uk

01344 771961 (Mon-Fri 09.00 - 17.00)

Hairline International - the Alopecia Patient's Society

Help support and advice to people with alopecia and all hair loss conditions.

01564 775281

Mon-Fri 09.00 - 16.30

Herpes Viruses Association (SPHERE) and Shingles Support Society

Treatment information and self-help tips for those suffering from shingles, cold sores and herpes-related viruses.

www.herpes.org.uk

020 7609 9061

Ichthyosis Support Group

Promotes the welfare of children and adults affected by ichthyosis.

www.ichthyosis.co.uk

01635 253829

Let's Face it

Information, advice and support for people with facial differences and their families.

www.lets-face-it.org.uk

01843 833724

Limbless Association

Provides information, advice and support for those with amputations. Also provides access to local user groups.

www.limbless-association.org

0845 2300025

Lupus UK

Advice, help and support to people affected by lupus, including condition discoid lupus.

01708 731251

Mon-Fri 09.00 - 17.00

National Ankylosing Spondylitis Society

Provides information and advice to those with AS. Also offers a forum for patients.

www.nass.co.uk

01435 873527

National Eczema Society

Support and advice to people with eczema.

www.eczema.org

0870 271 3604 (Mon-Fri 13.00-16.00)

National Lichen Sclerosus Support Group (UK)

Information and support about lichen sclerosis.

www.lichensclerosus.org

07765 947599

Neurofibromatosis Association

Supports, advises and helps people affected by neurofibromatosis.

www.nfauk.org

020 8547 1636 (Mon-Fri 09.00-17.00)

Psoriasis Association

Advice, help and support to people suffering from psoriasis.

www.timewarp.demon.co.uk/psoriasis.html

01604 711129 (Mon-Fri 09.00-17.00)

Psoriasis forum

Interactive forum offering support groups to people suffering from psoriasis.

www.psoriasis-help.org.uk

Raynaud's Scleroderma Association

Information and support to people affected by Raynaud's and scleroderma.

www.raynauds.demon.co.uk

01270 872776 (Mon-Fri 09.00-17.00)

TAG, the Arthrogryposis Group

Offers support and advice to those with arthrogryposis.

www.tagonline.org.uk

01299 825781

The Bells Palsy Network

Offers information, support and advice, as well as a support group for those with Bell's palsy and other related conditions.

www.bellspalsy.net

The Birthmark Support Group

Support group for people with birthmarks.

www.birthmarksupportgroup.org.uk

0845 045 4700

The TED Charitable Trust

Provides information, care and support to people with thyroid eye disease and offers a network of support groups.

www.tedct.co.uk

01797 222 338

UK Craniofacial Support Group

Support and advice for people with any form of craniofacial conditions or syndromes.

www.headlines.org.uk

01926 334629

Vitiligo Society

Information, help and support for people with vitiligo.

www.vitiligosociety.org.uk

020 7840 0855 (Mon-Fri 10-00-17.00)

XP Support Group

Support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.

www.xpsupportgroup.org.uk

01494 890981 (Mon-Fri 09.00-21.00)

Skin Camouflage Specialists

British Association of Skin Camouflage

www.skin-camouflage.net

01226 790744

British Red Cross Skin Camouflage Service

www.redcross.org.uk

020 7235 5454